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Founded in 1973, the National Down Syndrome Congress is the country’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them.
They provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
Check out these resources from the web, books, Facebook, Twitter and Pinterest and let us know your favorite Down Syndrome Resource in the comments.
If you are looking for a good site to help explain Down Syndrome to parents, teens and children, Kids Health is the place.
Research Down Syndrome educates and inspires a caring society to fund biomedical research findings which will translate into safe and effective, approved therapies to treat the cognitive impairment in individuals with Down Syndrome of all ages.The Linda Crnic Institute For Down Syndrome is part of the University of Colorado School of Medicine.Their mission is to significantly improve the lives of all people with Down syndrome and eradicate the ill effects associated with Down Syndrome.Since their founding in 2004 DSRTF has become the leading private source of funding in the United States for Down syndrome cognition research.The website provides detailed information about the latest down syndrome research and clinical trials as well as information about applying for a research grant from the foundation.
Their goal is to apply cutting edge basic research to develop treatments that will help people with Down syndrome improve their cognition and forestall the onset of Alzheimer’s disease.